Long time…No post!

I have just recently found time to take up blogging again. Alex is doing AMAZING. We have not had a hospital stay in months…(knock on wood) and Alex is off all medications. We have a few appointments coming up that will hopefully end this medical junk for now. In the coming weeks , Alex has to get blood drawn and sent off to Cinn. Children’s Hospital in Ohio for immunology. This test is for the lymphocyte activation panel measuring his immune response. These test were always very elevated during his episodes, so now that he is stable the doctors would like to make a comparison for future reference. In July, we have the BIG ONE YEAR appointment. I thought we would never make it here! August brings another road trip to Philadelphia for testing and appointments with G.I. and possibly Orthopedics. As some of you may know, Alex was born with a birth defect, a missing finger. At CHOP in October last year, he had a consult with the orthopedic surgeon regarding repair. He was not strong enough to withstand the operation at that time but we were asked to bring him back around his birthday. Frank and I are doing ok considering all we have been through in the past year. The economy is jeopardizing his job at this time and he is currently applying for other positions. We do not know yet if this will require us t move but are open to the possibility. Alex turns one on July 9th and we will be celebrating on Sunday, July 12th at my mom’s. I will do my best to update this more regularly and will add some picture /videos shortly. Current information can be found on either http://www.helpalexbaker.com or on Facebook under
Samantha Baker-Washington, D.C.

He loves to read books!

He loves to read books!

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Christmas 2008

Santa Baby

santa…

Alex and Santa

Alex and Santa

Check out my Slide Show!

Check out my Slide Show!

CHUNKY MONKEY

Our peanut is now a chunky monkey! He saw the gastro doctor today and weighed in at 11 pounds!!!! That is double his birth weight! We were also giving permission to leave his NG tube out for a few days and see if he can tolerate his feeds by mouth. Our day got even better when we stopped by the hospital to see some old friends. Little did we know that sweet caroline was working days not nights! It was such a great surprise for both of us.

I start work tonight at ten pm and will get off at 6 am. Mom will be watching Alex overnight for me.

oh-and i will try to post more often but its been hard running back and forth to the doctors!!