when it rains…

it pours…so hate me for not posting but after you read of all this you may understand. In my last post i mentioned the good news of no bloody stools and no blood infection, well I spoke too soon. On tuesday morning, his stools began testing positive for blood. Monday night, his line clotted off. The I.V. team came at 2am and administered a clot busting medicine which had to sit in the line for 2 hours. At 4am they came back and tried to pull the clot out and were unsucessful. They administered another dose of medication and came back at 6am. At 6am they came back and were again unsucessful. They pulled the line at 11am. On tuesday we also found out that alex has another blood infection. There is a fungus growing in his blood stream as well as in his esophogus and throat. The bacteria in his blood is klebseilla pnemoniae and the fungus is candida albicans. On thursday he had an endoscopy and a colonoscopy to repeat the biopsies that were done at Fairfax. Those results should be back tomorrow. They also sent off stool studies for malabsorbtion which will be back this week. The IPEX blood work was sent off to Cinncinatti, OH and will take 2 to 6 weeks for the results. He is currently getting 10mls of neocate via the tube and 30mls via the bottle every 3 hours.

I should also mention I  had visitors…mom and carolyn came up for the day today. More importantly…grandma came and stayed with me all week. Mom brought her up on tuesday night and she stayed and rode home with mom today. It was so nice just to have someone to  hang out and talk with. She stayed up Alex every night so that I could get some rest. I also got to get out of the hospital. One of our nurses lives in the suburbs and gave me directions to get out there. I went to target and babies-r-us and lenscrafters (my contacts were killing me with all this dry hospital air).